The new Rheumatologist was utterly unhelpful - ignored previous test results confirming Small Fibre Neuropathy, asked questions then wouldn't let me answer them, abused me for taking too many medications for the pain SFN was causing, then having ignored the abnormal SFN test results said that there was no evidence at all that there was anything actually wrong with me and therefore I should stop the treatment I was already on as she doubted it was doing anything for me anyway. She left me feeling like I had been treated as though she thought I was making everything up to get access to pain medication.
My existing Rheumy was appalled.
That leaves me with no treatment to slow/stabilise the rate of nerve damage...and my understanding is that any nerve damage that is more than about 2 months old is permanent. The wait for that appointment with its completely unhelpful outcome used up my 2 months grace that might have saved my ability to walk without needing crutches. So now I find myself having to accept that the state I am in now will be the best I can hope for going forward.( Read more... )